Joan’s Story

I remember flipping through the Peace Corps brochure at the end of college, looking at it and wondering, “Could this be a way out?” I had been struggling with bulimia since my senior year of high school and was just starting to get a handle on recovery, but if I wanted to serve in an overseas assignment, I was going to need a clearance letter from my therapist.

Over the next 12 months, I doubled down on my efforts to overcome my eating disorder. Moving out of the dorms and into my own apartment after graduation helped immensely. I was away from the triggers I so often encountered within friend groups and family with whom I’d never learned–or felt safe–establishing boundaries. Being on my own helped me discover my natural cycles of energy, fatigue, and hunger as well as intuitive eating. It helped me to escape the compulsive binging and purging that had been the result of trying to live my life on other peoples’ terms.

By the Fall after graduation, my doctor was ready to sign off on my recovery and I was accepted for a Peace Corps in rural Niger. Living and working in a remote village proved not only to be a life changing experience but it cemented my ED recovery as well. Getting to escape my home environment and western media was a unique godsend. Life in Niger completely eliminated the constant low hum of guilt and shame; the guilt of feeling like I should always be trying to work out more or eat less–neither being an option in the village–and the shame of binging and purging, also not an option at the time.

Now, I’m not telling anyone to run away to the middle of nowhere in order to treat an ED. Not only is it not an option for most, but it did not magically solve my body image issues. You see, I came home from my two-year service, enrolled in grad school, and immediately relapsed from the stress of school and work. I went back to a therapist and was beside myself, asking questions like, “Why didn’t my time away solve this problem? Why didn’t medication and therapy fix all of this? I thought I was better.” The answer was that my first therapists and I had never really explored the underlying issues of my binging. What they, and perhaps I, thought was purely a superficial issue (i.e., body image, self-consciousness, etc.) was actually rooted in much deeper fears I had not recognized or felt safe naming when I was first being treated for bulimia at 18 years old.

Back then, I believed the doctors when they said that the problem was a “lack of self-love” but I struggled to find the metaphorical light switch in my mind, the one that would allow me to experience gratitude and pride in my body. So, I piled the shame of not being able to love myself on top of the shame of my binging and purging. I also tried my hardest to believe those doctors when they claimed societal expectations were “bogus” or that since I could not “prove” people were judging me, I should let go of perceived judgment. But I failed at that, too.

In fact, therapy back then always felt like a low-level gaslighting. I knew what I was seeing in magazines and movies and hit TV shows. All the A-list actors, clothing models, and successful performers seemed to have an obvious thinness in common. Did my doctors expect me to believe that none of that was real? That it was all in my mind? It felt real. The world felt real and my fear felt real. It all created a real lack of trust on my part. I started to wonder how, if they were that blind to reality, they could possibly help me. I was also getting frustrated by what I felt was a need for me to engage in performative self-confidence during therapy. It felt like they were trying to check some metaphorical box of “treatment” but I didn’t feel like I was experiencing improvement. I felt hopeless for wasting my parents’ money on the appointments–they were paying for whatever insurance didn’t cover–and quickly began to grow skeptical of the whole recovery process.

I realize now that recovery isn’t, and wasn’t, hopeless, but that the approach which was taken was not the right one for me. Framing recovery as a journey to self-love might work for some people, but it was, and still is, never going to work for me. The truth is, there are parts of me that I still do not love, and that I may never “love”, whatever that means in terms of body-positivity.- a movement and mindset that never really sat right with me. Essentially, that if you are not comfortable in your own skin then you must not love yourself, and that if you’re not 100% proud of yourself 100% of the time then you’re at fault or not trying hard enough. It was just compounding shame on top of shame. Almost like telling ED suffererers that they want recovery badly enough or that they’re trying to resist getting better– For me, the inability to express body positivity did not feel like a choice I was making, I was merely living-surviving-in a society that shames people for certain physical features and/or over-sexualizes certain body parts. A society in which I never felt safe loving myself in the first place. In fact, I’m still scared. I still ask myself the questions I always have, like, “Will I lose out on things in life because I look a certain way? Jobs? Relationships? Opportunities?” Or “What if a man isn’t attracted to me because of my curvy body?” Or worse, “What if a man is too attracted to me because of my curvy body?”

I feel silly even typing those questions out, but for transparency’s sake, I must admit that they have been the white noise of my life, even during therapy doctors laughed them off and downplayed my fears. It was a disillusionment that led me to stop attending sessions altogether sophomore year of college. And I might have been lost for good, had one of the volunteers in the college health clinic not shared with me a news story at the time. It was that of a young woman found dead in her car in a shopping mall parking lot. The cause of death: a ruptured esophagus. She had been bulimic. I suddenly realized how dangerous my addiction was and the life-or-death consequences of not seeing recovery through. Even though I was still scared of being in my skin and scared of continuing to gain weight during recovery, the potential of dying, especially at my lowest point, was far more terrifying. It was the turning point that saved my life.  

PRECIPITATING FACTORS

When people ask me about the origins of my eating disorder it’s hard to know where to begin. There was no singular event that was the genesis for my way of thinking or behaving. It was more like a slow growth over time. Like a snowball that kept gaining mass and momentum. Or like the metaphor of the frog in the boiling water. The story goes that if you place a frog in boiling water, it will immediately leap out. But if you set a frog in warm water and slowly turn up the heat, it will not jump out. That’s because the frog adapts to the increase in temperature. It grows used to the heat. It knows only the heat. It does not realize there is any other way of existing beyond the heat, even when it is burning and frantic to get out. That’s how dysfunction works. It’s not always obvious, or acute. Sometimes it’s more subtle. Hidden. Insidious. Designed to intimidate people into silence. But I finally have the courage to say it out loud: environmental factors matter. And what goes unspoken, goes untreated.

I grew up in what I could consider a stable home environment: two loving parents, roof over my head, no physical abuse, no obvious addictions, or obvious signs of co-dependencies. Sure, there were fights and tension, but we just learned how to dance around it. How to let things pass. Or how to hold on to them. Inside. How to use passive aggressive behaviors to express emotions like confusion, fear, and anger until it boiled over into the next fight. And the next one. And the next one. Perhaps that’s why doctor after doctor, therapist after therapist, would go on to tell me that I grew up in a “chaotic home environment”, even though it is a phrase neither they, nor I–would have ever relayed back to my parents.

And why would I want to? What right did I have to criticize them back then? How could I blame the two people that had worked so hard to keep it all together: to pay the mortgage, to get me and my siblings into a good school system, to but my expensive racing suits for swim team, to get my brother the best treatment for his ADD, to get my sister help for her mood swings, to get my father treatment for his PTSD? Who the hell was I to criticize them for how it all turned out? I didn’t have those problems. I didn’t have any problems. In my mind, I was blessed. Lucky. Fine. I honestly thought that if I felt any ounce of frustration at the situation, it would have made me look ungrateful.

I realized early on that the only way to deal with my feelings of discomfort and helplessness at home was to stuff it down inside until I could figure out how to get away from it. As a teenager, the only escape I saw was college. And so, I consistently enrolled in the hardest classes and got involved in as many extracurriculars as I could, even when I was overwhelmed. “Perfectionism”, “all-or-nothing thinking”, and “catastrophizing,” may not have been terms I was familiar with at the time, but they were the operating system with which I was hard-wired. All I knew was that any budging on course load or any attempt to take it easy on myself was a threat to my potential escape plan, and so I took on the weight of it all. I was balancing the stress of applying to as many out-of-state reach schools as I could while also going through puberty; gaining weight and curves as a tomboy whose whole identity had been that of an athlete, now trying her hardest to conceal wide hips, big breasts, and a round tummy that didn’t look the way her friends did in crop tops, low rise jeans, or swim team racing suits.

As college rejection letters trickled in and the weight piled on, I became a mess of desperation and failure. Feeling completely helpless and ashamed, I cried in secret in my room, asking myself questions like, “What was wrong with me? Why can’t I win? Why am I so cursed?” And I remember using the word ‘cursed’ because that’s how I viewed my genetics. My DNA. While my mother and my twin sister were thin and slight, I had developed a huge chest and huge hips and so I figured I was taking after my father who was in a larger body his whole life. I was afraid I was becoming that, afraid that maybe people would look at me like how I figured people looked at him. And since I could not make that fear disappear, or the weight disappear, I became bitter and full of anger. Another feeling I did not have a name for at the time. Besides, anger wasn’t something I was supposed to feel. I was the one in my family who avoided conflict. I was the “good” child. I was “better” than that. Better than anger. Or so I thought.

Again, I did not realize I was angry at my father at the time. I just knew that it felt like my skin was stinging and my insides were on fire every time I heard him sneak into the kitchen at night to graze on a box of cereal for 15-20 minutes at a time. His fist pummeling into Honey Nut Cheerios, the sound of his hand drawing a mouthful to his lips, the loud crunching that pierced the air and taunted me in me in my bedroom down the hall, curled up pressing my hands so hard to my ears I didn’t care if I burst my eardrums by accident. To this day my blood pressure goes from zero to sixty if I hear someone crunching hard food like cereal or chips. To this day, it’s still the sound that triggers me the most.

I know now that I was upset with my father but had no way to verbalize it. I remember the questions I asked myself: Why is he doing that to himself? Why can’t he stop? Why can’t I just say something? Why do I feel like Mom would just get really angry at me if I did? I asked those questions every night, in as ritual a fashion as his midnight snacking. And even though I could appreciate that he had been through traumas in his life, and that perhaps he was as helpless to his weight and food issues as I was, I was still upset that he could not stop eating. I thought that people were judging him and I was angry that he couldn’t make it stop, because I didn’t want anyone judging my dad from the outside. He was a good guy. He was my hero. What if they can’t see that? I thought. What if they can’t see past the fat? What then? What if he has a heart attack right now? I suppose I was frustrated that he wasn’t fighting harder to stop that from happening. Or perhaps I was as scared of being judged by others as I perceived them to be judging him.

At the end of the day, my desperation to get away from home and to get out of my “cursed” skin became too much to bear and that’s when I discovered a “way out”. Or so I thought. A high school teacher showed us a movie about the dangers of eating disorders during health class sophomore year. The film she chose was about a thin woman with bulimia and featured a very svelte, very popular actress at the time. And while I cannot blame my teacher or that actress, I do remember it being the first time I considered the possibility of purging as a way to contain all of the things I felt were spinning out of control around me. I talk about this time of my life in a book I am writing about overcoming my bulimia. This excerpt encapsulates the genesis of my ED and what I was feeling at the time:

“It was the late 90’s and the height of “heroine chic”. She [actress] was but one in a whole generation of [women] skyrocketing to fame the more they could make themselves look like skeletons in slip dresses, skin and bones in silk and backless gowns, spaghetti-strap tank tops pasted to their emaciated bodies. I was surprised my health teacher thought any teenage girl could possibly accept the idea that trying to be skinny will make your life worse when the media was bombarding us with the message that trying to be skinny will make your life better.

That resonated with me as an insecure 16-year-old. I was thick and muscular, with large breasts and wide-set hips that had invaded my body overnight the summer after eighth grade. Puberty came late but had struck with a vengeance, dealing the tomboy in me a humiliating defeat. I thought that losing weight would make my life easier, undo some of that embarrassment, turn the dial down on the fear that came along with being curvy. I reasoned that if I could change my body then I would look like I controlled it, and if I could look like I was in control, then no one would dare take advantage of me. In my mind, being skinny offered protection.

WHAT DID IT FEEL LIKE TO HAVE AN ED? WHAT WAS I TRYING TO SAY?

Purging became something that made me feel powerful. Not necessarily in control. In fact, I intentionally do not use the phrase “in control”, which I feel is one overused in treatment. It’s an easy tag, a simple way to label the sufferer and say, “This person just wants to control things and if we can address the need for control then we can fix them.” But this was never about control for me. I never wanted to be in control. I just didn’t want to feel helpless and I think it is an important nuance that often gets misdiagnosed. After all, isn’t it a lot easier for a clinician to tell someone “You need to accept not being in control,” rather than “You need to accept feeling helpless”?

Hurting myself by binging and purging was a way to counteract that helplessness. To express my pain. Hurting myself was a way to express, to expel, the hurt I felt at not being able to express my anger and fear at home. The things I told myself in those moments, the hate and the disgust I hurled at myself in the mirror were really exaggerations of things I wanted to say to the people around me but could not. Years of frustration boiling over. Years of being told to “just drop it” if I spoke up about problems in the family. Years of being told that it was “my fault” if I was distressed over someone else’s inappropriate behavior. Years of feeling so hopeless that at some point I just threw my hands up and thought, “Screw it, I don’t even care how badly I’m hurting myself because what’s the point? I’m trapped in this home dynamic and I’m never going to get out. Or get to be like my friends. Or like the successful people in this world: light and pretty and blessed. Not heavy and ugly and cursed.”

And that’s how it felt for those years from high school into college. Like being the frog in the boiling water without having the permission to say it out loud. Maybe that’s why doctors did not pick up on how bad it was. Or thought the answers lie in simply telling me to journal about my feelings or to “go for a walk instead of binging.” They thought I was a frog in warm water looking for some options, they didn’t understand that I was burning up, reacting to pain and deep-seated compulsions, not acting on reason or making decisions in a vacuum.

The good news is, when I graduated college and moved into an apartment alone it was like all of the hot water drained away. It wasn’t that treatment–i.e., medication, therapy, self-work–had not worked, but more so that it had always felt like ice cubes tossed into the boiling water, helping some, but not fully healing. Which is not to dissuade anyone from seeking help or trusting the process, but rather a call to clinicians and parents to acknowledge how much environmental factors do feed into eating disorders. And I’m not blaming my parents for my actions or my “chosen” coping mechanism. I don’t think they had any idea how bad my eating disorder was. Or how bad my people-pleasing was. Or that I was learning how to do that instead of learning to set boundaries. That my being “a good little girl” was symptomatic of how I was just trying to keep the peace in what I felt was an unpredictable space. That my habit of going along to get along ended up bleeding into my first friendships, some of which were not borderline toxic–a trait doctors would tell me I sought out in order to recreate familiar dynamics, a way to reach for safety and security by proving my loyalty to others.

Note: If you are not aware of what people- pleasing looks like or how detrimental it can be, here’s an example of some typical thoughts that crossed my mind on a daily basis back then: “My friend wants to hang out but I have a paper due? I guess the paper will have to wait. I don’t want my grade to suffer but I also don’t want to get in a fight right now. Best to just give in to what she wants, even if I end up punishing myself with a binge later.” Or, “My friend wants to order pizza but I already ate? I guess I’ll have to just eat again and find a bathroom because that’s the lesser of two evils. It’s much easier to punish or hurt myself than to hurt her feelings by saying, ‘No’.”

Again, all of these things were swirling around in my head and I don’t think I had a true ability to recognize them or the courage to combat them because I had convinced myself that I was fine. Because I had to be. Because not being fine might draw attention to problems at home and then what? Would my parents get angry? Would there be retaliation? They had spent hundreds of dollars for me to go say things to psychologists in private, to brainstorm “behavioral changes” only to walk right back into an environment where it didn’t feel safe or good to put any of that into practice. If it’s not obvious by now, what I was trying to say through my eating disorder was that everything was not fine. That I was not okay. And at the same time, I am lucky that my mother finally recognized it.

WHAT DID RECOVERY LOOK + FEEL LIKE?

I’ll never forget that day in May, senior year of high school, two weeks before prom. The day my mother stopped me on the way out of the bathroom and said, “You have a problem. Can I take you to the doctor?” Apparently, she had overheard me purging more than a few times and had already researched and contacted an eating disorder specialist. Although I was mortified to have had my secret revealed, I was relieved to no longer be alone in my shame.

While I struggled to reconcile those feelings of frustration at home with gratitude for my mother’s care, I began seeing the psychologist once a month. Things started off alright. It felt good to talk to someone about all I had been hiding. However, when I headed off to college, a few months later, things went off the rails and I began bingeing more to deal with the stress of school and socializing all while trying to look good and impress all of these new strangers. Everything felt like a crushing wave of defeat, like there was no way out for me and that I was going to be stuck forever in that state of unbearable stress and fatigue.

For better or worse, the physical and mental loads became so high that I could no longer deny their existence. I had to face it, I–the perfect student, the perfect child–was overwhelmed and failing. When I checked in with my therapist over Christmas break, I finally started using words like stress, confusion, fear, exhaustion, etc. Words my younger self, so desperate to get out of my house and away from my hometown, would never have uttered for fear of those emotions standing in the way of my success and my escape from it all. Before returning to school in the Spring, the doctor prescribed a high dose of medication to help with Generalized Anxiety Disorder, the first time anyone had officially used the diagnosis with me.

After a few weeks, I could feel it starting to work and take the edge off, but I can’t say it made me feel “good” or “better”. It just kind of numbed my brain. And made me really tired. And  hungry. It was like a double-edged sword: enough to slow the racing thoughts and allow me to better rationalize with myself yet zapping me of the energy I needed to succeed in school, and more importantly, to keep up with a regular exercise routine. I gained weight and by the end of sophomore year felt like I had gone all the way back to square one: mortified and hopeless. At some point, I just resigned myself to the mantra that “the only way out is through”; that I might have to endure the discomfort of body changes and fatigue short term if it meant a way out of the 24/7 bulimia cycle in the long run.

It was around this time that I heard about the young woman who had died from the ruptured esophagus and it just reassured me that I needed to keep going. I researched survivor stories and found strength in those, too. I sat with my fear, my shame, and discomfort, and found a lot of gray areas among my black and white thinking. I accepted that I could not just magically wake up one day and stop. And that I wasn’t weak or a failure for that. I was able to find some room for permission, and grace, to go at my pace of recovery. I started to set small goals around behavior usage. By senior year, I had made great progress. By the time graduation rolled around, I was able to see light at the end of the tunnel. For the first time, I had faith in my ability to manage my life and create a future for myself.

Likewise, I learned to be very cognizant of the living and working environments in which I choose to remain or those of which I choose to leave. And while I sometimes feel ashamed that old triggers and fears and shame still follow me, I am proud of how fiercely I have protected my peace and gotten myself out of situations that threatened to disrupt my years of recovery. I may not be perfect, I may still struggle to set boundaries, I may still struggle to talk to my fear and my all-or-nothing thinking, but I know I will never put myself back in a position where I’m taking all of that out on myself. I have learned to stand up for myself. I have learned to communicate my fears. I have learned to be more honest with those around me. I know that what I have gained in finding my voice is far more than anything I have lost.

The truth is, I have gained understanding with family members, even if we need more space at times. I have gained healthier friendships, even if it has meant letting go of others. I have found jobs that align with the work-life balance I need to maintain recovery. I have gained faith in myself and a wealth of pride and confidence to replace the years of shame and confusion. I have gained a pride in surviving and getting to the other side of my fears, to the other side of a wall I never thought I would scale. I have gained these words and I want them to be heard. I want someone else who may be feeling similar fears or struggling with similar things to not feel so alone in that. I want you to know that I feel you, I see you, and that there is goodness waiting for you in recovery.

Intersection of Diet Culture and Eating Disorders

From Within

Eating disorders are complex mental health conditions that develop from a combination of biological, psychological, and environmental factors. But for many people, diet culture plays a significant role in encouraging and maintaining disordered eating behaviors. It can also play a role in the development of eating disorders.

Understanding diet culture

There is no specific definition of diet culture, which can make the concept especially insidious. But, broadly, the term refers to a range of related ideas around body weight and shape, lifestyle, diet, and exercise.

Essentially, diet culture glorifies thin, “toned bodies,” presenting them as the epitome of health and the one “true” healthy body type. Achieving this shape is not just encouraged in diet culture but elevated to a moral imperative; it is sometimes considered the most important goal someone can achieve. (1) It is always prioritized over a person’s actual health and well-being.

In this light, diet culture dictates that all aspects of someone’s life and lifestyle must revolve around working on or prioritizing the goal of having a thin, toned body. Those not proactively working towards this are not only considered “lazy” in diet culture, they are also thought of as “amoral” or “bad” people.

This false dichotomy also applies to food. Just as diet culture recognizes “good” (or “ambitious”) people who try to “stay fit,” and “bad” (or “lazy”) people who don’t, so too does diet culture designate “good” and “bad” foods. “Bad” foods—which change based on whichever foods are currently being targeted by the latest fad diet—are demonized, which can invariably lead to internalized or external criticism over food choices.

In general, diet or workout plans promoted by diet culture encourage everyone to strive for the same body shape, regardless of their current weight or health status, medical history, or emotional or mental well-being.

Media, advertising, and diet culture

On a cultural scale, diet culture gets a massive boost from long-held beauty ideals, including the thin ideal for women and lean, muscular bodies for men in Western cultures. Movies, TV shows, advertisements of all types, including the Internet, have long been understood to spread these and other unrealistic beauty standards, which have been directly tied to body dissatisfaction, disordered eating behaviors, and eating disorders. (3)

Diet culture presents itself as an antidote to this dissatisfaction, offering a path to achieving the “perfect” body or one that resembles the cultural ideal. It assures people that these goals aren’t just realistic but achievable by all and, ultimately, the primary thing worth striving for in life.

Websites, influencers, magazines, or ads that tout plans for “getting the perfect beach body,” “thinspiration” content or particular diets or workout plans are some of the more apparent messengers of diet culture. However, some savvier brands have started promoting “wellness” instead of pushing for weight loss.

In many cases, these messages can be even more treacherous, as they superficially present as being “inclusive,” but are still coded with diet culture ideals. In fact they are often delivered by people in “ideally thin” bodies. The danger lies in the same type of moralized and black-and-white thinking: Achieving “wellness” is the “ultimate goal,” and every choice someone makes either moves them toward that goal (good) or away from it (bad).

Diet culture and disordered eating behavior

While specific diets may be legitimately recommended to be followed by people with certain health concerns, such as Celiac disease or Diabetes, dieting specifically to lose weight or achieve a particular body shape can have many negative impacts on mental and physical health and well-being. (4)

When the world is painted in terms of absolutes: “good” and “bad” foods, “right” and “wrong” bodies, it can make every choice or non-choice feel like a moral test and potential trigger. For example, the idea that some foods are “bad” can make someone feel guilty or ashamed after eating them. This is an extremely harmful thought pattern tied to disordered eating and several eating disorders. (2)

Diet culture promotes itself as championing health, but it often works to normalize disordered eating behaviors, including skipping meals, calorie counting, and other restrictive eating practices. These, in turn, frequently lead to even more problems like low self-esteem, feelings of failure, and the development of increasingly disordered eating behaviors to “counteract” these effects. (4,5)

Diet culture as a risk factor for eating disorders

Aside from encouraging the development of disordered eating behaviors, diet culture can also play a role in the development of full-blown eating disorders.

One of the most dangerous aspects of this worldview is the undue focus and attention it puts on dieting and body shape and size. A fixation with body image, food, and eating is a key factor in nearly every type of eating disorder. (6) Many conditions are also maintained by the belief that self-worth is directly tied to appearance, a thought often implied by diet culture. (6,11)

The conflation of dieting and moral superiority raises the stakes much more, adding even more pressure for someone to keep these ideas at the top of their minds. It can help create a sense of high personal standards and encourage concern or self-criticism when these standards aren’t met. In the scientific world, those are the same traits that make up “perfectionism,” a characteristic that has long been associated with eating disorders. (7)

On the other side of that coin is the perpetuation of harmful stereotypes that help power weight stigma, weight discrimination, and weight bias. The presentation of a thin, toned body as a universal priority and the result of a moral quest can feed anti fat bias.

Race, gender, sexuality, socioeconomic status, and diet culture

Aside from perpetuating problematic beliefs that can lead to fatphobia, weight bias, and weight stigma, diet culture also has roots in racism, gender discrimination, and classism.

The idea that controlling what one eats and having a slender body offers a sense of moral superiority dates back to the 1800s when European enslavers used the concept as another way to separate themselves from—and hold themselves above—enslaved Africans, who tended to have larger bodies. (10) It offered a shorthand way for the ruling class to point at a Black person in a larger body and say they were lazy, amoral, or inferior. (10)

On the gender divide, diet culture has long targeted cisgender women, though people of all genders are undoubtedly impacted by widespread images of “ideal” bodies. (11) The cultural “lessons” largely passed on to cisgender women, however, is that their worth is intrinsically tied to their appearance—and particularly, their weight. (11)

As awareness around the specific concerns of the LGBTQIA+ community has expanded, so have realizations that this community, too, is deeply and negatively impacted by diet culture. Statistics suggest that members of this community are more likely to experience disordered eating behaviors than their cisgender heterosexual peers, though more research is needed in this burgeoning field. (12)

Recovering from eating disorders in a diet culture society

Recovering from an eating disorder is a difficult journey in any case, and it can be even harder in a society so fixated on diet and physical appearance. However, some strategies can help quiet the outside noise of diet culture and other unhelpful voices, allowing someone to focus more deeply on their recovery.

One of the best ways to confront diet culture is to meet it where it primarily lives: online. Combing through your social media is a great place to start. Look through all the accounts you’re following and get rid of any that perpetuate these types of harmful thoughts or practices.

You can also take some proactive actions. Start following accounts that promote inclusivity, neutrality, size diversity, attentive self-care, intuitive eating, joyful movement, and other helpful practices—but remember to be careful, as many “wellness” accounts still peddle many of the same toxic ideas associated with diet culture. On the flip side, you can take an active role in telling the algorithm “no” by reporting unhelpful content or marking “not interested” if that’s an option offered in the app.

Working to expand your sense of self-worth beyond your weight or appearance is another way to quiet the harmful ideas of diet culture. Start by identifying goals that align with your morals, then work toward achieving them. The same technique can be used for new hobbies that are good for you and make you feel good. And values work can also be helpful. Taking time to determine your values and understand why they may or may not align with diet culture values can be an illuminating experience.

A therapist or other mental health professional can help you with these strategies and offer different approaches and types of support that can help you cultivate a successful recovery journey. But regardless of the shape your path takes, the most important thing to remember is not to lose hope. Even a “bad” day in recovery is one more day spent moving away from harmful thoughts and actions and toward a healthier and happier future.

Resources

  1. Daryanani, A. (2021, January 28). Diet Culture & Social Media. University of California San Diego. Accessed April 2024.
  2. Vizin, G., Horváth, Z., Vankó, T., & Urbán, R. (2022). Body-related shame or guilt? Dominant factors in maladaptive eating behaviors among Hungarian and Norwegian university students. Heliyon, 8(2), e08817.
  3. Uchôa, F. N. M., Uchôa, N. M., Daniele, T. M. d. C., Lustosa, R. P., Garrido, N. D., Deana, N. F., Aranha, Á. C. M., Alves, N. (2019). Influence of the Mass Media and Body Dissatisfaction on the Risk in Adolescents of Developing Eating Disorders. International Journal of Environmental Research and Public Health, 16(9), 1508.
  4. Habib, A., Ali, T., Nazir, Z., Mahfooz, A., Inayat, Q., Haque, M. A. (2023). Unintended consequences of dieting: How restrictive eating habits can harm your health. International Journal of Surgery Open, 60, 100703.
  5. Memon, A. N., Gowda, A. S., Rallabhandi, B., Bidika, E., Fayyaz, H., Salib, M., & Cancarevic, I. (2020). Have Our Attempts to Curb Obesity Done More Harm Than Good? Cureus, 12(9), e10275.
  6. Eating Disorders: About More Than Food. (n.d.) National Institute of Mental Health. Accessed April 2024.
  7. Wade, T., O’Shea, A., Shafran, R. (2016). Perfectionism and Eating Disorders. In: Sirois, F., Molnar, D. (eds) Perfectionism, Health, and Well-Being. Springer, Cham.
  8. Weight bias and obesity stigma: considerations for the WHO European Region. (2017). World Health Organization. Accessed April 2024.
  9. Mason, T. B., Mosdzierz, P., Wang, S., Smith, K. (2021). Discrimination and Eating Disorder Psychopathology: A Meta-Analysis. Behavior Therapy, 52(2): 406-417.
  10. Diaz, A., Lee, S. (2023, January 26). The Road Map for Action to Address Racism. Mount Sinai. Accessed April 2024.
  11. McHugh, M. C., & Chrisler, J. C. (Eds.). (2015). The wrong prescription for women: How medicine and media create a “need” for treatments, drugs, and surgery. Praeger/ABC-CLIO.
  12. Eating Disorder Statistics. (n.d.) National Association of Anorexia Nervosa and Associated Disorders. Accessed April 2024.
  13. Jacquet, P., Schutz, Y., Montani, J., Dulloo, A. (2020). How dieting might make some fatter: modeling weight cycling toward obesity from a perspective of body composition autoregulation. International Journal of Obesity, 44: 1243-1253.

bodyliberationoutdoorclub

Since May of 2021, our mission has been to create safe zones in the outdoors for folks living in big and marginalized body sizes. When we aren’t out hiking on the trails, you can also find us camping, swimming, and tubing alongside other outdoor activities. Being out in Mother Nature affirms and embraces us for who we are.

Matter of Fat Podcast

Matter of Fat, co-hosted by Cat Polivoda and Saraya Boghani, highlights community voices with a focus on body size, body positivity, & fat liberation. We hear guests’ stories as a matter of fat – honoring and learning about their intersecting identities while grounding the conversation in body positivity & body politics. We also create and share resources, chat social justice, popular culture, & Midwest life – all as a matter of fat.

This American Life’s Tell Me I’m Fat

The way people talk about being fat is shifting. With one-third of Americans classified as overweight, and another third as obese, and almost none of us losing weight and keeping it off, maybe it’s time to rethink the way we see being fat. A show inspired by Lindy West’s book Shrill. https://www.thisamericanlife.org/589/tell-me-im-fat

Motivational Interviewing in Nutrition and Fitness by Dawn Clifford and Laura Curtis

Fat Activism: A Radical Social Movement by Charlotte Cooper

Fat Girls in Black Bodies by Dr. Joy Cox

Feeding Your Child in Recovery

By OJ Bushell

It might be surprising to some who know me that I actually do most of the cooking and meal prep for my two-year-old child. I say this, because well, just a couple of years ago, I could barely feed myself. Instead, I was in and out of treatment for anorexia.

Having lived and living experience of eating disorder recovery places me and all other parents with these struggles in a unique position to figure out how to not only feed ourselves, but also how to nourish our children without “passing our struggles” onto our kids.

Eating struggles are so commonplace in adults that the usual advice to parents with eating concerns is to take care not to “pass it on” to their kids.

Not such a hot take: It’s hard to feed kiddos when you’re in recovery from an eating disorder.

I don’t think anyone in recovery from an eating disorder wishes to pass on their struggles to their own children. While eating disorders have a high genetic component to their risk, they are biopsychosocial illnesses, and thus also carry environmental risk as well. My partner, who is not in recovery from an eating disorder or disordered eating, carried and birthed our daughter. Despite the fact that my daughter does not share any of my genetics, “passing it on” to her is still something I worry about frequently.

Our family is fat positive.

Our family actively advocates against weight stigma.

But my brain…my damn brain is still sorting things out recovery-wise.

So, how do I go about raising an anti-diet kiddo who has a well-rounded relationship with food?

Even though I’m in a solid place in recovery, I still experience guilt after eating at times. I’m so mindful of my commentary around food in front of my child because I see how observant, curious, and insightful she is already. She picks up on everything and the last thing I want is for her to pick up on my own anxieties around food.

Sometimes I reflect on what it would look like if I fed her through the lens of my eating disorder. In fact, when she first started eating solid foods, I noticed there was significant discourse in the baby led weaning community around avoiding sugar and processed foods, for example.

I found myself making muffins and baked oatmeal with diet culture-laden ingredients.  And while there isn’t anything wrong with this, for me, it was a slippery slope into my eating disorder’s orthorexic tendencies. I also found myself feeling guilty if I gave her a more processed snack because it was the convenient food we had on hand at the time.  What message was I sending to my child at such a young age that she needed to avoid certain foods?

I mean, when she was an infant, we followed responsive feeding and followed and responded to her cues. So why would this change merely a few months later with the introduction of solid foods?

Because I want my child to have exposure to all food and make decisions about what she wants to eat when she is older, one of the most challenging parts about feeding my child has been having to feed her food that I feared the most. No, don’t worry, this food is not inherently bad – I would never say that any food is so bad you can’t eat it, unless it’s poisoned or spoiled.

Admittedly, I have found myself hypervigilant about what my child eats and subsequently, have wanted to control my child’s food intake at times – both in terms of quantity and food type, not because I gain any sort of gratification from doing so, but because managing anxiety and uncertainty with food is what I’m used to. Watching her eat straight from a Costco size bag of snacks brings me both the greatest joy and intimidation. I have spent years unlearning that food is not equated with possible danger, but when it comes to my child, whom I love so deeply, there’s still a piece of me that ticks – well, could there be danger in that food? For me, any desire to restrict my child’s eating has been born out of the deep desire to love, protect, and care for. It’s in recognizing, though, that those things come with raising a child who can eat responsively and autonomously.

One thing I’m learning through this whole parenting alongside recovery thing, is that, friends, you just don’t have to do things perfectly. It’s such a ubiquitous bordering cliché message, but one that rings so true with parenting. There’s a lot of pressure on parents when it comes to feeding their littles. This starts even in the womb to be honest. As I mentioned above, while baby led weaning worked for us, there was pressure to prepare elaborate, homemade, perfectly balanced meals every day. And let’s be honest, while I’m primarily responsible for packing day care lunches, mine are NOT Instagram-worthy.

I’ve struggled with my overall self-worth as a parent both in terms of my recovery status and in the thoughts I’ve had around feeding my child. Because really, is there anything more important than the need and desire to feed your child well?

But through the past almost two years, this battle for self-worth has softened a bit too. By helping myself learn to feed my child and accept where she is at, I’ve also in turn, helped myself. I wouldn’t want my child’s body to be any different – her tummy that she shows off willingly, her thighs that power her little waddle. This acceptance helps me accept my own body – the parts of me that I once disapproved of – and the right to feed myself. For, there’s no greater joy than watching my toddler’s joy of being in her own body.

The Art of Body Acceptance: Strengthen Your Relationship with Yourself Through Therapeutic Creative Exercises By Ashlee Bennett
The Art of Body Acceptance: Strengthen Your Relationship with Yourself Through Therapeutic Creative Exercises By Ashlee Bennett

The Art of Body Acceptance: Strengthen Your Relationship with Yourself Through Therapeutic Creative Exercises By Ashlee Bennett

Ashlee Bennett will teach you how to reclaim your creativity and make amends with your body using art.

The Body is Not an Apology: The Power of Radical Self-Love
The Body is Not an Apology: The Power of Radical Self-Love

The Body is Not an Apology: The Power of Radical Self-Love

The Body Is Not an Apology offers radical self-love as the balm to heal the wounds inflicted by violent systems of oppression

The Body Liberation Project: How Understanding Racism and Diet Culture Helps Cultivate Joy and Build Collective Freedom By Chrissy King
The Body Liberation Project: How Understanding Racism and Diet Culture Helps Cultivate Joy and Build Collective Freedom By Chrissy King

The Body Liberation Project: How Understanding Racism and Diet Culture Helps Cultivate Joy and Build Collective Freedom By Chrissy King

From author and wellness personality Chrissy King, an exciting, genre-redefining narrative mix of memoir, inspiration, and activities and prompts, with timely messages about social and racial justice and how the world needs to move beyond body positivity to something even more exciting and revolutionary: body liberation.

Pork Belly Tacos with a Side of Anxiety by Yvonne Castaneda
Pork Belly Tacos with a Side of Anxiety by Yvonne Castaneda

Pork Belly Tacos with a Side of Anxiety by Yvonne Castaneda

In Pork Belly Tacos with a Side of Anxiety, Yvonne Castañeda shares vibrant stories of her childhood growing up in Miami as the daughter of humble immigrants from Mexico and Cuba . . . and how she came to develop an unhealthy relationship with food.

The Wellness Trap: Break Free from Diet Culture, Disinformation, and Dubious Diagnoses, and Find Your True Well-Being By Christy Harrison
The Wellness Trap: Break Free from Diet Culture, Disinformation, and Dubious Diagnoses, and Find Your True Well-Being By Christy Harrison

The Wellness Trap: Break Free from Diet Culture, Disinformation, and Dubious Diagnoses, and Find Your True Well-Being By Christy Harrison

The Wellness Trap delves into the persistent, systemic problems with that industry, offering insight into its troubling pattern of cultural appropriation and its destructive views on mental health, and shedding light on how a growing distrust of conventional medicine has led ordinary people to turn their backs on science.

whitneytrotter.rd

Whtiney Trotter, MS, RDN/LDN, RN, RYT (she/her) is a Registered Dietitian and RN, Anti-racism Educator/Consultant and Human Trafficking Activist

your_body_is_good

Amanda Martinez Beck (she/her) is a fat activist, body image coach, & author of More of You: The Fat Girl’s Field Guide to the Modern World

yrfatfriend

Aubrey Gordon (she/her) is an author, columnist, and cohost of Maintenance Phase. Her work has been published in The New York Times, Vox, Literary Hub, SELF, Health, Glamour and more. Her first book, What We Don’t Talk About When We Talk About Fat was released in November 2020. Her second book, “You Just Need to Lose Weight” and 19 Other Myths About Fat People, is a New York Times and Indie bestseller.

meganjaynecrabbe

Megan Jayne Crabbe (she/her) is best known for changing the narrative of how women feel about their bodies. She is the author of Body Positive Power.

Belly of the Beast By Da'Shaun L. Harrison
Belly of the Beast By Da'Shaun L. Harrison

Belly of the Beast By Da’Shaun L. Harrison

In this book, Da-Shaun takes on desirability politics, the limitations of gender, the connection between anti-fatness and carcerality, and the incongruity of “health” and “healthiness” for the Black fat. Harrison viscerally and vividly illustrates the myriad harms of anti-fat anti-Blackness. They offer strategies for dismantling denial, unlearning the cultural programming that tells us “fat is bad,” and destroying the world as we know it, so the Black fat can inhabit a place not built on their subjugation.

"You Just Need to Lose Weight": And 19 Other Myths About Fat People By Aubrey Gordon
"You Just Need to Lose Weight": And 19 Other Myths About Fat People By Aubrey Gordon

You Just Need to Lose Weight: And 19 Other Myths About Fat People By Aubrey Gordon

The co-host of the Maintenance Phase podcast and creator of Your Fat Friend equips you with the facts to debunk common anti-fat myths and with tools to take action for fat justice

Anti-Diet: Reclaim Your Time, Money, Well-Being, and Happiness Through Intuitive Eating By Christy Harrison
Anti-Diet: Reclaim Your Time, Money, Well-Being, and Happiness Through Intuitive Eating By Christy Harrison

Anti-Diet: Reclaim Your Time, Money, Well-Being, and Happiness Through Intuitive Eating By Christy Harrison

Reclaim your time, money, health, and happiness from our toxic diet culture with groundbreaking strategies from a registered dietitian, journalist, and host of the Food Psych podcast.

Decolonizing Wellness: A QTBIPOC-Centered Guide to Escape the Diet Trap, Heal Your Self-Image, and Achieve Body Liberation By Dalia Kinsey
Decolonizing Wellness: A QTBIPOC-Centered Guide to Escape the Diet Trap, Heal Your Self-Image, and Achieve Body Liberation By Dalia Kinsey

Decolonizing Wellness: A QTBIPOC-Centered Guide to Escape the Diet Trap, Heal Your Self-Image, and Achieve Body Liberation By Dalia Kinsey

Become the healthiest and happiest version of yourself using wellness tools designed specifically for BIPOC and LGBTQ folks.

Fat Talk by Virginia Sole-Smith
Fat Talk by Virginia Sole-Smith

Fat Talk by Virginia Sole-Smith

Fat Talk is a stirring, deeply researched, and groundbreaking book that will help parents learn to reckon with their own body biases, identify diet culture, and empower their kids to navigate this challenging landscape. Sole-Smith draws on her extensive reporting and interviews with dozens of parents and kids to offer a provocative new approach for thinking about food and bodies, and a way for us all to work toward a more weight-inclusive world.

Fearing the Black Body: The Racial Origins of Fat Phobia By Sabrina Strings

An important and original work, Fearing the Black Body argues convincingly that fat phobia isn’t about health at all, but rather a means of using the body to validate race, class, and gender prejudice.

How to Raise an Intuitive Eater by Sumner Brooks and Amee Severson
How to Raise an Intuitive Eater by Sumner Brooks and Amee Severson

How to Raise an Intuitive Eater by Sumner Brooks and Amee Severson

A manifesto for parents to help them reject diet culture and raise the next generation to have a healthy relationship with food and their bodies.

Landwhale By Jes Baker
Landwhale By Jes Baker

Landwhale By Jes Baker

By the author of Things No One Will Tell Fat Girls and a heroine of the body image movement, an intimate, gutsy memoir about being a fat woman. A deeply personal take, Landwhale is a glimpse at life as a fat woman today, but it’s also a reflection of the unforgiving ways our culture still treats fatness.

Reclaiming Body Trust: A Path to Healing & Liberation
Reclaiming Body Trust: A Path to Healing & Liberation

Reclaiming Body Trust: A Path to Healing & Liberation

Informed by the personal body stories of the hundreds of people they have worked with, Reclaiming Body Trust delineates an intersectional, social justice?orientated path to healing in three phases: The Rupture, The Reckoning, and The Reclamation. Throughout, readers will be anchored by the authors’ innovative and revolutionary Body Trust framework to discover a pathway out of a rigid, mechanistic way of thinking about the body and into a more authentic, sustainable way to occupy and nurture our bodies.

Sick Enough By Dr. Jennifer Guadiani
Sick Enough By Dr. Jennifer Guadiani

Sick Enough By Dr. Jennifer Guadiani

Sick Enough offers patients, their families, and clinicians a comprehensive, accessible review of the medical issues that arise from eating disorders by bringing relatable case presentations and a scientifically sound, engaging style to the topic. Using metaphor and patient-centered language, Dr. Gaudiani aims to improve medical diagnosis and treatment, motivate recovery, and validate the lived experiences of individuals of all body shapes and sizes, while firmly rejecting dieting culture.

your.latina.nutritionist

Dalina Soto RD LDN (she/her) is an anti-diet dietitian. She founded Your Latina Nutritionist because she’s passionate about building nourishing new narratives for us that don’t include depriving ourselves of the foods we grew up eating. Her work is about supporting you to reclaim the flavor and enjoyment of your life by celebrating the foods you love and incorporating them into your daily life with education and awareness.

thethicknutritionist

Natasha Ngindi is a non-diet nutritionist helping you find peace around food, love your body, and move in ways that bring you joy!

theshirarose

Shira Rose (she/her) is an eating disorder therapist, LCSW who operates from a fat positive + Health At Every Size framework

heysharonmaxwell

Sharon Maxwell (she/her) is a speaker; weight inclusive consultant; and fat activist

jessicawilson.msrd

Jessica Wilson, MS, RD (she/her) is a clinical dietitian, consultant and author, whose work focuses on her experiences navigating the dietetic fields as a Black, queer dietitian

melissadtoler

Melissa Toler (she/her) is a former wellness coach turned writer, speaker, and educator

nalgonapositivitypride

Non-conventional eating disorder awareness organization run by Gloria Lucas (she/her). Her work focuses on eating disorder harm reduction.

newmoonrd

Meghan McGann, RD (she/her) is an anti-diet dietitian who advocates for inclusive care.

nic.mcdermid

Nic McDermid (she/her) is a fierce activist, feminist, advocate and content creator whose work focuses on disrupting the dominant discourse around weight and bodies, and challenging the ways in which certain types of bodies are both idolised and idealised.

ragenchastain

Ragen Chastain (she/her) is a Speaker, Writer, Researcher, Board Certified Patient Advocate, ACE Certified Health Coach and Functional Fitness Specialist. She primarily writes about the intersections of weight science, weight stigma, health and healthcare at the WeightAndHealthcare substack

resilientfatgoddex

SJ (they/them) is a Coach, Consultant, And Soon To Be Social Worker Focused On Fat Liberation Based In Anti-Racism And Anti-Colonialism.

thefatdoctor

Dr. Asher Larmie is a fat doctor campaigning for an end to medical weight stigma so that everyone can access fair and equal healthcare irrespective of the number on the scales.

thefriendIneverwanted

Nia Patterson (they/them) is a queer, fat body Liberation Coach, consultant, writer, speaker, activist, and author

thenutritiontea

Shana Minei Spence,MS,RDN,CDN (she/her) is a non-diet, weight inclusive dietitian who created this platform for an open discussion on nutrition and wellness topics considering all the information circulating around these days.

v_solesmith

Virginia Sole-Smith (she/her) writes about diet culture, anti-fat bias, feminism and health. She is a journalist whose latest book is, Fat Talk: Parenting in the Age of Diet Culture

thrivewithmeg

Meghan Watson (she/her) is a licensed psychotherapist, writer & consultant. She is the founder of the group practice Bloom Psychology & Wellness — a therapy collective of Black, Indigenous, South Asian, and Multi-racial therapists with a focus on building connection and fostering emotional growth in communities of colour. She shares reflections, skills and tools on how to show up as your whole self through a self compassionate and growth focused lens on her Instagram page

bodyimage_therapist

Ashlee Bennett, AThR is an art therapist and artist and the author of The Art of Body Acceptance. Her areas of special interest include body image, internalized weight stigma/fat phobia, disordered eating/eating disorders, chronic dieting, and trauma.

bodyimagewithbri

Bri Campos is a body image educator who teaches body acceptance through grief

bodyjusticetherapist

Allyson Inez Ford is an eating disorders and OCD therapist. Social justice is an integral part of her work and she operates from a HAES lens.

bodyliberationwithlindley

Lindley Ashline is a body liberation photographer, writer and activist

drcolleenreichmann

Dr. Colleen Reichmann is a clinical psychologist whose writing and work focus on body image, eating disorders, motherhood, and feminism.

decolonizingfitness

Ilya Parker founded Decolonizing Fitness in an effort to help dismantle toxic fitness culture. It is an online resource hub for coaches, gym owners, personal trainers and anyone who is invested in cultivating movement spaces that are more affirming and supportive to diverse bodies.

dr.jenniewh

Dr. Jennie Wang-Hall is a liberatory eating disorders psychologist creating community spaces for anti-carceral and agentic care

encouragingdietitian

Christyna Johnson, MS, RD, LDN is a non-diet registered dietitian specializing in eating disorder, disordered eating, intuitive eating, and body image. She sees the world through a liberation lens and advocates for collective care to move us forward.

edadhd_therapist

Stacie Fanelli, LCSW is an AuDHD eating disorder therapist who discusses neurodivergence, EDs, intersectionality & treatment reform

drrachelmillner

Dr. Rachel Millner is a psychologist, Certified Eating Disorder Specialist and Supervisor, and a Certified Body Trust® provider. Her work is trauma-informed, fat-positive, anti-diet and rooted in feminist theory, relational theory, social justice, and body liberation

dietitiananna

Anna Sweeney, MS, RDN, CED-S is a relational nutrition therapist who specializes in eating disorders, disordered eating, and chronic illness

Burnt Toast

Virginia Sole-Smith engages guests in conversations about how we dismantle diet culture and fatphobia, especially through parenting, health and fashion

Peace Meal

Peace Meal covers topics related to eating disorders, body image, and how society may influence our thinking.

Can I Have Another Snack?

Can I Have Another Snack? podcast is an exploration of appetite, identity, and bodies. We talk about how we feed ourselves and our kids (in all senses of the word!), and the ingredients we need to survive in diet culture. We’re sitting with the questions: who or what are we nurturing? And who or what is nurturing us? Hosted by Laura Thomas – anti-diet nutritionist and author of the Can I Have Another Snack? newsletter.

The Full Bloom Podcast

For busy parents who want a regular dose of body-positive parenting wisdom, this podcast features conversations with experts from a wide range of fields

The Body Grievers Club

Brianna Campos is changing the cultural conversation from diets and rules to acceptance and freedom. This is a podcast that explores the ins and outs of body image, self-esteem, diet culture, self-love, and finding peace as you come home to your body.

Recovery Warrior Shows

Experts and warriors who know what it takes to recover from an eating disorder tell their stories and share evidence-based research that inspires, educates, and enlightens the path to recovery for all people impacted by eating disorders.

Maintenance Phase

Debunking the junk science behind health fads, wellness scams and nonsensical nutrition advice.

Navigating Weight & Scale-Neutral Conversations With Your Doctor

Navigating Weight & Scale-Neutral Conversations With Your Doctor by Sara Remus, MEDA Social Media Manager

While the concept of Health at Every Size (HAES) is slowly making its way into the medical field, finding HAES practitioners remains a struggle. While they do exist, they are still few and far between. That makes it all the more important to know how to advocate for yourself when moving through the health care system, especially as it is very likely that many of your providers will not be HAES informed. In Massachusetts, there are just 14 healthcare practitioners on the official HAES registry.

This doesn’t mean that your provider may not share HAES values. It does mean that you should be prepared to champion your needs when visiting your doctor, and that goes well beyond your physical health. We’ve compiled some tips  to help you guide your interactions with your health care team to a place that is safe for your body and mental well-being. Read on for some ideas for having a weight and/or scale neutral conversation with your doctor.

If you have the opportunity to communicate with your provider through a digital platform, use it to start the conversation. 

Many health care facilities use secure digital patient portals to schedule appointments, provide test results, and offer payment options. This can also be a great resource for setting expectations when you request an appointment with your provider. Usually, these programs will give you the ability to submit a note when requesting to see your doctor. You can disclose as much or as little as you feel comfortable with. This is an example of how you could potentially make the request:

“Hello, I’m looking for an appointment to be seen for (insert issue and any details here). Please add a note in my request that I would like for this appointment to not involve any discussions around weight, and would prefer to not be weighed. If I must be weighed, due to something like medication whose dose is weight dependent, I request that the nurse and doctor allow me to be weighed with my back to the scale and not share any of my weight information with me.”

If you are comfortable doing so, you can share that you are recovering from an eating disorder, and that these sorts of conversations and having information about your weight tends to be triggering and not helpful in your recovery process. However, you are certainly not obligated to provide this information!

If there is not a patient portal available for communicating with your doctor’s office, you can also offer this information over the phone. If you’re not comfy doing so, you could also draft a hand-written or typed note that you can fax to the office ahead of time or hand deliver to any medical personnel when you arrive for your first appointment. You might find it handy to keep several copies of this note in your wallet or bag, so that you can hand it to a provider in a pinch. If, for example, should you end up in an emergency or last-minute situation where there isn’t time for the conversation to be had ahead of time.

If you have a behavioral health provider, ask them for help.

If you have a counselor, therapist, or social worker that is helping you through your recovery, ask them for advice in navigating your specific needs with a medical doctor. In many cases, your behavioral health provider will be happy to communicate with your doctor directly, with your written permission to do so. These communications typically happen over the phone or hrough a secure platform. You can ask to see what is being communicated between your providers (or not!). Your counselor, therapist or social worker can handle discussions with your provider that you may not feel comfortable having.

If you feel you are being diagnosed incorrectly due to your size, be vocal. 

It is a sad truth that some health care practitioners blame weight as the culprit for illness or injury before investigating and addressing other potential causes. We know that weight is usually not the cause of problems that typically lead us to visit our doctor.

If you feel that your doctor is attributing your pain or condition(s) to your weight, try asking them the following questions:

  • “If weight were not a factor, how would you go about treating me?”
  • “Would you give the same advice to someone who was in a thin body?”
  • “It is important to me that we look at all the potential causes for why I am experiencing these symptoms. Can you think of any other causes aside from my weight?”

If they insist that the issue is weight related and refuse to talk to you about any other potential causes, you can request to see a different provider. Having these sorts of conversations with your doctor can be quite uncomfortable, so if you decide not to push back on your provider, walk away from this appointment without answers and go elsewhere, that is completely understandable. It is important to remember that you are entitled to look for other doctors. When looking for a new provider, make sure to ask if they’re willing to have a weight-neutral discussion.

Lastly, if you have ever worked with a specialist for an eating disorder, they can be a great resource in helping you find educated medical practitioners suited to provide you with quality care that doesn’t revolve around weight. You may also find that asking around in your recovery group is a great way to find a doctor you can trust. Don’t be afraid to advocate for yourself. If that sounds a little scary, remember that it’s OK to lean on others for support!

Dispelling Diet Culture Once and For All

Dispelling Diet Culture Once and For All by A Recovery Warrior in the Community

Despite its pervasiveness in our society, “diet culture” is not an easy term to define because of the many facets it encompasses. That said, “diet culture” is a belief system that idolizes thinness and equates it with moral superiority and good health. Diet culture is more than going on a diet. It is, as mentioned above, a belief system, or a culture in and of itself. Diet culture is also insidious because of its ubiquity – it becomes difficult to notice because it is so dominant in our culture. This way of thinking about food and our bodies is so deeply embedded that it becomes hard to recognize. Often, diet culture masks itself as health or wellness. Think: Noom.

The impacts of diet culture are significant and harmful to folks of all sizes. Diet culture perpetuates eating disorders, normalizes disordered eating, and instills deep-rooted insecurities. In other words, it sets all of us up to feel poorly about ourselves, judge and compare ourselves to others, all while promising that losing weight is a panacea. Diet culture suggests that in order to be loved, accepted, successful, and happy you have to be thin.

In addition, diet culture oppresses people who don’t align with what diet culture’s image of “health” is. This has racist, patriarchal, ableist, healthist, and transphobic roots. The people who are harmed the most are women, BIPOC, transgender folks, and people with disabilities.

Despite what diet culture claims, healthy and unhealthy bodies come in every shape and size. Those who are deemed “healthy” should not be put on a pedestal nor should there be a moral obligation to be healthy. But even beyond that, the use of weight, BMI, or body size as proxies for health should be rejected. Weight is just a marker of size, not health. Health is a multifaceted construct and other factors such as the social determinants of health (e.g., education, income levels, discrimination, access to health care, etc.) play a large role in whether or not you are in good health.

Additionally, scientifically speaking, diets for weight loss don’t even work. So, what we’re left with is billions of dollars poured into an industry that is capitalizing off of people’s insecurities.

So how can you begin to break free from diet culture?

  1. Challenge and think critically about comments on weight, size, and shape as they relate to “health” and “wellness”.
  2. Learn about Health at Every Size ® (HAES), a movement that acknowledges that health is primarily driven by social, economic, and environmental factors, not weight. This approach encourages pursuing one’s own health, not as an obligation and independent from a focus on weight loss. HAES is built on five principles, including weight inclusivity, health enhancement, eating for well-being, respectful care, and life-enhancing movement.
  3. Consider intuitive eating. Created by Evelyn Tribole and Elyse Resch, intuitive eating is based on 10 principles (e.g., honor your hunger, make peace with food, and challenge the food police).
  4. Reject any diet or “wellness” lifestyle that comes with rules. Do you have rules floating around in your head constantly about what you can or cannot eat, when you can eat, etc.? Diet culture instills one-size-fits-all rules into us, which goes against the many different factors that contribute to meeting our own food needs, like nutritional needs, taste preferences, cultures, and food access and budgets.
  5. Instead of spending time and energy trying to lose weight, use that space to do things you genuinely enjoy – read a book, learn a new hobby, spend time with family and friends.
  6. Accept that health is complex and nuanced. Health is not an obligation nor a measure of self-worth. Despite what diet culture may have us believe, there is very little about health that is in our control.
  7. Cultivate the belief that your body is worthy of care and nourishment no matter its size.

Taking Focus Away from Diet Culture

Taking Focus Away from Diet Culture

By Victoria Kupiec RD, LDN, Director of Nutrition Services, Timberline Knolls

Diet culture is a prominent part of society that is often difficult to avoid. Conversations surrounding diet are ever-present on social media, in stores, and on television. This diet culture places a strong emphasis on achieving the ideal level of thinness with the promise of love, acceptance, and health to follow.

We are often told that we will suffer from disease and feelings of worthlessness if we fail to achieve an appropriate weight. Blame and ever-changing body standards that transform with time serve as major barriers to sustaining well-being.

The focus on unrealistic body standards promotes a cycle of shame that further attracts individuals to diet culture and products with the intention of “fixing” their bodies. Yet, the majority of diets that are started with the intention of weight loss are unsuccessful in the long term. Individuals often feel shamed or guilty if they are unable to meet the goals they set for themselves. If someone does not experience or sustain the weight loss they desire, they may adopt the belief that they are weak and do not possess enough willpower to manage their weight.

The overwhelming number of individuals whose dieting is unsuccessful points toward a big-picture issue with approaches rather than a problem with the individual. Another aspect that impacts the effectiveness of dieting tools is their heavy reliance on external cues and strategies. A more effective approach to support a positive relationship with food should instead focus on building sustainable habits that are not rooted in restriction and that help rebuild the body’s own innate wisdom to guide one’s eating.

Individuals who begin dieting will often regain the weight shortly after, which triggers the continuation of the dieting cycle. This cycle and the associated negative feelings leave our bodies and minds exhausted. Over time, this fatigue takes a toll on our emotional and physical well-being. The adverse effects of dieting can be seen with every fad diet that emerges, yet it is common place to fault the individuals rather than the approaches.

One solution to this struggle is to allow ourselves an open-minded approach to discover how we interact with food. Individuals are encouraged to develop and honor internal cues of hunger and fullness while exploring how different foods affect their bodies. This would also involve permission to incorporate foods for enjoyment. By allowing ourselves to explore the tastes, smells, and textures of food through an unbiased lens, we can find a balanced, yet diverse connection with what we eat.

These methods of self-inquiry are important, especially when supplemented by education from healthcare professionals who are trained in nutrition. There is no single solution to achieve a body image that you are comfortable with. Because each individual, and their relationship with food and eating, is unique, it is important to emphasize the body as a complex and multifaceted system that must be nurtured and cared for. In this way, our society can begin to see the importance of a person’s well-being, rather than focusing solely on their weight.

Fatphobia is probably something you’ve heard about but didn’t have a name for.

Fatphobia is probably something you’ve heard about but didn’t have a name for.
Written by Meagan Mullen, Clinician and Community Outreach Specialist

It is no secret that our society can be judgmental, competitive, and appearance-obsessed. So it’s no surprise that people in bigger bodies can be treated poorly. Most people are probably aware of the fact that being in a bigger body comes with a certain stigma, and having negative attitudes or thoughts about these people is called fatphobia. Similarly, weight stigma is stereotyping people based on their weight.

These types of thoughts and beliefs can often lead to chronic dieting, disordered eating, or full blown eating disorders!

There have been plenty of articles (here and here) that highlight the dangers of fatphobia (and weight stigma!) and showcase how present it is in our society, but what do we do to work against this type of discrimination and unhealthy belief?

There are a few steps we can take to address this issue, and they might be easier to achieve than you think.

1. Recognize your own bias.

Just like with any type of discrimination or unfair treatment, it’s important to be aware of our own biases. It can be hard to live in a society with such apparent judgments on appearance and not catch ourselves slipping up. In a way, we’ve been taught to think certain things that we hear from others, from the media, or even from parents, friends, and family. That being said, acknowledging our own biases is the first step in changing our thought patterns and beliefs.

2. Challenge fatphobic thoughts you have or words you use.

When you catch yourself saying things that might have a negative connotation in relation to someone’s weight or size, STOP! Be patient and kind to yourself as you work against these beliefs that have been ingrained in so many of us. Try using language that is more neutral like “bigger-bodied,” or just drop the body descriptors all together!

3. Read up/learn more about Health At Every Size® (HAES) or body positive movements.

Research and engage with communities/resources online or in person to learn more about how toxic diet culture is! Not only will this information help to challenge some of your own biases, it will also provide you with the necessary language and information to educate/share with others.

4. Set boundaries with others in regards to their language.

If you hear someone else making comments that are fatphobic or degrading about someone’s weight or size, speak up! You can always try to educate others about the Health At Every Size® (HAES) movement, or you can simply tell people that commenting on appearance isn’t appropriate and can lead to negative body image and disordered eating. You can also talk with a trusted friend, adult, family member, or therapist to strategize ways to set these boundaries. My personal favorite: reminding people that there are more interesting things to talk about than someone’s body, diet, exercise, etc.

5. Advocate for and work towards body acceptance.

This is a lifelong goal! So many people are affected by negative body image, chronic dieting, and eating disorders. Helping others realize that a lot of what we’ve been taught about weight and size is false can continue the growth of body positivity.

While no single person can change the world alone, there are plenty of likeminded individuals who see the harm that fatphobia does. Working on these small steps in your own life can begin to change your thought patterns, beliefs, and might even improve your own body image!

Tips for Talking to Your Doctor About Their Weight Stigma and Your Eating Disorder

Written by Monique Bellefleur, Ed.M, LMHC, MEDA Director of Community Education

I hear time and again from clients that they are afraid to go to the doctor’s office. I don’t blame them when I hear their stories: The doctor told them they were eligible for gastric bypass surgery (even though they had not asked about it and have an active eating disorder); They had a heart rate in the low 40’s and the doctor told them they were perfectly healthy (even though they had a BMI of 17 and an active eating disorder); They went to the doctor’s for a sinus infection and the doctor told them they need to lose weight. The list goes on…

However, it remains important to receive medical care. Although we wish the medical community understood more about eating disorders, we unfortunately have to learn to be our own best advocates until the medical community catches up.

Here are MEDA’s 5 tips for speaking to your doctor about their weight stigma and/or your eating disorder:

  1. Don’t be intimidated: Remember, doctors are just people who have gone to medical school. Yes, they have spent years studying the human body, but that does not mean that they are perfect, all-knowing beings. Even though eating disorders have the highest mortality rate of any mental illness (Smink et al, 2012), a 2014 national survey found that out of 637 internal medicine, pediatric, family medicine, psychiatry, and child and adolescent psychiatry programs, 514 did not offer any scheduled or elective rotations for eating disorders (Mahr et al, 2015).
  2.  Use your Voice: Doctors are often overbooked, overworked, and rushing to the next appointment. We all know the overwhelming feeling that comes from listening to your doctor rapidly firing off questions while simultaneously directing you to stick out your tongue, say “ahh”, take deep breaths, cough three times, undress, redress, on and on. It may seem impolite to interrupt this process to ask your own questions, but you deserve to be heard, especially when it comes to your health. Speak up and express your questions and concerns about your care and your body until you feel satisfied with the information you have received. It is not your fault that you have an eating disorder. It is a serious mental illness that deserves appropriate care, and you may need to be very upfront with your doctors regarding your ED. Learning to use your voice is an important part of eating disorder recovery- think of it as an opportunity to practice.
  3. Confidence is Key: It’s a natural response to respect a person of authority’s opinion, but you are the expert on yourself. If something doesn’t feel right, let the doctor know, including when you feel dismissed. For example, if not seeing your weight is helpful for your recovery, tell the doctor and medical staff directly. If they happen to let that information slip (which seems to happen frequently!), bring it to their attention. If you feel like your doctor is dismissing your condition due to your body size or eating disorder diagnosis, tell them. Doctors take the Hippocratic oath to “do no harm”. It may be uncomfortable, but if their comment or behavior harmed you, you can let them know. By educating your doctor on how they made you feel, you may be saving another patient from a similar experience.
  4. Come Prepared: Have you created a plan with your treatment team for how you will handle your doctor’s appointments? Have you done research of your own on a suspected condition? Bring this information with you. Write your questions and symptoms down in advance. Bring along a friend or loved one if you need support. When you are prepared, you will be less likely to panic and forget your questions. If you have literature to share with your doctor about eating disorders, weight stigma, or any other condition, share it with your doctor and express how important it is to you that they consider the information. They may not have had a chance to learn about these topics in their medical training.
  5. Connect them to MEDA: MEDA offers free trainings to the medical community on eating disorders and weight stigma. If you feel like your doctor could benefit from a training, connect them to MEDA at education@medainc.org or at 617-558-1881.

Resources to bring to your doctor’s office on eating disorders and weight stigma:

Citations:

Mahr, F. , Farahmand, P. , Bixler, E. O., Domen, R. E., Moser, E. M., Nadeem, T. , Levine, R. L. and Halmi, K. A. (2015), A national survey of eating disorder training. Int. J. Eat. Disord., 48: 443-445. doi:10.1002/eat.22335

Smink, F. E., van Hoeken, D., & Hoek, H. W. (2012). Epidemiology of eating disorders: Incidence, prevalence and mortality rates. Current Psychiatry Reports,14(4), 406-414.

Do I have Orthorexia? 4 Questions to ask

Written by Meg Salvia, MS, RDN, CDE  from Walden Behavioral Care 

Is there such a thing as eating too healthfully?

Orthorexia can be bit of a tricky topic: while it isn’t formally included as its own eating disorder in the Diagnostic and Statistical Manual (DSM-5), there’s growing concern about the physical and psychological impact of striving to eat “properly” in overly “healthy” patterns. At the same time, it seems counterintuitive to be concerned about eating too healthfully.

When is this a problem, and what should you do if you have concerns that this might be an issue for you or someone in your life?

Orthorexia is a pathological obsession or compulsion to eat healthfully or purely. Anorexia nervosa, as included in the DSM-5, includes the hallmark drive for weight loss and thinness. With orthorexia, the goal isn’t necessarily weight loss but a drive to consume foods considered pure, natural, or virtuous—distress is typically experienced around foods perceived as unhealthy. It’s also separate from appropriate or constructive efforts at supporting bodily function, because orthorexia results in a negative impact on functioning or health. 

Although there isn’t an official screening tool or standardized diagnostic criteria to assess (yet this is a work in progress [2]), asking the questions below might highlight if or how orthorexic tendencies might be problematic. It can be helpful to take a look at this from both the mental health and physical health points of view.

1) If my eating choices are driven by a desire to support my body’s health, am I actually meeting my body’s needs?

To support our physical health, meals and snacks need to meet the basic principles of adequacy, balance, and variety. We need to get enough fuel (energy and hydration) to support metabolic functions, include all the major food groups (including carbohydrates, fats, and proteins) and be exposed to a wide variety of foods to engage our senses and provide an array of micronutrients.

It’s certainly possible that pursuing an aggressive eating pattern means we’re not getting all the nutrition our body needs in one form or another. If our choices are rigid, omit entire food groups, or get progressively more and more limited, malnutrition could be a problem.

2) Are you no longer eating foods you once enjoyed?

Often, choosing nutritious foods to help support physical function and overall health means adding foods to ensure adequate intake of healthful foods. “Pathological nutrition” (as eating disorders dietitian and orthorexia expert Jessica Setnick calls it) often results in reductions or limitations around intake. Preference for eating only healthy foods can be a socially acceptable way of restricting our intake.

Is there a sense of fear and anxiety around foods that once brought enjoyment and pleasure? Do you notice your food choices becoming narrower and narrower?

3) Do my eating patterns and choices impact my functioning and engagement in life?

Here are some of the ways that orthorexia can have a negative impact on your daily life, outlook, and mental health:

• Obsessive thoughts: frequent and intrusive thought patterns about what you’re allowed or not allowed to eat, what you’ve eaten in the past, or what you will eat in the future. These thoughts can occupy a large chunk of the day, distract from other activities, or be a frequent and repetitive focus of attention.

• Feeling isolated or socially limited: Do rigid eating patterns or limited permission to eat a variety of foods prevent you from hanging out with friends, socializing with coworkers, or joining family at meals or events? Are your eating patterns helping you plug in to your social life, or are they barriers? Are you only able to socialize with those whose eating patterns look like yours?

• Attaching moral value or self-worth to what are perceived as virtuous choices: Do you see yourself as a better person for the choices you make around food? Are you harsh on yourself when your meals and snacks don’t live up to your own standards? Is this an ever-moving target you never reach? Feeling a sense of accomplishment with nourishing and taking care of our bodies can be appropriate, but if this feels like a significant or inflexible part of your identity or how you judge your self worth, it can be a sign that it’s orthorexia.

• Harsh judgment of yourself or others’ food choices: Are you unable to eat at restaurants based on what else is on the menu? Is your social circle limited because of what others are eating? It might feel uncomfortable to recognize there’s an element of judgment in our assessment of others’ choices. What impact is this having on our lives?

4) What’s the deeper reason behind my food choices?

See if you can identify what is driving your quest to eat healthfully. Have you experienced a health event in your family that brought health and eating patterns to the forefront of your attention? Experiencing a loss or having a health scare often prompts us to evaluate our own health risks or those of other people in our lives; If this feels panicky or obsessive, though, that can be a red flag.

Does making specific food choices give you a sense of control or safety? Are you choosing foods based solely on the fact that they feel safe and won’t cause you anxiety?

If it feels like you’re experiencing any of the above symptoms, or answered yes to any of the questions, know that it is absolutely worth it to get help. As always, we’re here for support.

References

1. Setnick, Jessica. The Eating Disorders Clinical Pocket Guide, 2nd Edition. 2016 Academy of Nutrition and Dietetics.
2. Dunn TM, Bratman S. On orthorexia nervosa: A review of the literature and proposed diagnostic criteria. Eating Behaviors. 2016: 21(11-17).

Meg Salvia, MS, RDN, CDE is the dietitian at Walden Behavioral Care’s Peabody clinic. She sees adolescents and adults in the partial hospitalization program as well as in the binge-eating intensive outpatient program. She is also a board-certified diabetes educator (CDE). She began her career working in research at Joslin Diabetes Center and joined Walden Behavioral Care’s team in 2013. Meg earned a Master’s degree in nutrition from Boston University and a BA in English from Boston College.

This blog was originally published March, 2018 at https://www.waldeneatingdisorders.com/do-i-have-orthorexia-4-questions-to-ask/ and is republished here with permission.